TheBathOutlet / CureSMA at a Glance
CureSMA at a Glance
TheBathOutlet has teamed up with CureSMA to raise awareness of the number one genetic cause of?death?for infants.?CureSMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA) -- a disease that takes away a person's ability to walk, eat, or breathe.
About SMA
Spinal muscular atrophy (SMA) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. SMA affects approximately 1 in 10,000 babies, and about 1 in every 50 Americans is a genetic carrier. SMA can affect any race or gender. But there's great reason for hope. We know what causes SMA and what we need to do to develop effective therapies, and we're on the verge of major breakthroughs that will strengthen our children's bodies, extend life, and eventually lead to a cure.
Research
Since 1984, Cure SMA has led and invested in the research that has made today's breakthroughs possible. With deep connections and expertise in both the patient and research communities, we're uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. Ten years ago, we had just one potential drug in the beginning stages of preclinical discovery. Five years ago, we had four. Today we have over a dozen, including five now in clinical trials.
Family Support and Patient Care
We won't stop working toward a world without SMA, but until we have a treatment and cure, we'll do everything we can to improve quality of life for children and families affected by the disease today. We also reach the healthcare community through our continuing medical education events and care series booklets.
Conference and Community
Our Annual SMA Conference brings together researchers, healthcare professionals, and families to network, learn, and collaborate. Today, we have more than 110,000 members and supporters, with 31 volunteer chapters throughout the country. We host approximately 300 fundraising and awareness events annually.
About SMA
Spinal muscular atrophy (SMA) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. SMA affects approximately 1 in 10,000 babies, and about 1 in every 50 Americans is a genetic carrier. SMA can affect any race or gender. But there's great reason for hope. We know what causes SMA and what we need to do to develop effective therapies, and we're on the verge of major breakthroughs that will strengthen our children's bodies, extend life, and eventually lead to a cure.
Research
Since 1984, Cure SMA has led and invested in the research that has made today's breakthroughs possible. With deep connections and expertise in both the patient and research communities, we're uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. Ten years ago, we had just one potential drug in the beginning stages of preclinical discovery. Five years ago, we had four. Today we have over a dozen, including five now in clinical trials.
Family Support and Patient Care
We won't stop working toward a world without SMA, but until we have a treatment and cure, we'll do everything we can to improve quality of life for children and families affected by the disease today. We also reach the healthcare community through our continuing medical education events and care series booklets.
Conference and Community
Our Annual SMA Conference brings together researchers, healthcare professionals, and families to network, learn, and collaborate. Today, we have more than 110,000 members and supporters, with 31 volunteer chapters throughout the country. We host approximately 300 fundraising and awareness events annually.